Reports

2014 American College of Medical Genetics and Genomics (ACMG)

ACMG Updates Recommendation on "Opt Out" for Genome Sequencing Return of Results

2013 Presidential Commission for the Study of Bioethical Issues

Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts

European Society of Human Genetics

Recommendations "Whole-genome sequencing in health care"

EURAT

Cornerstones for an ethically and legally informed practice of Whole Genome Sequencing

German Society of Human Genetics

Stellungnahme der Deutschen Gesellschaft für Humangenetik zu genetischen Zusatzbefunden in Diagnostik und Forschung

Berlin-Brandenburgische Akademie der Wissenschaften (BBAW)

Neue Sequenzierungstechniken: Konsequenzen für die genetische Krankenversorgung

German Ethics Council

Die Zukunft der genetischen Diagnostik - von der Forschung in die klinische Anwendung

American College of Medical Genetics and Genomics (ACMG)

ACMG Recommendations for Reporting of Incidental Findings in Clinical Exome and Genome Sequencing

2012 Presidential Commission for the Study of Bioethical Issues

Privacy and Progress in Whole Genome Sequencing

2011 PHG Foundation

Next steps in the sequence: The implications of whole genome sequencing for health in the UK

European Science Foundation, ALLEA

The European Code of Conduct for Research Integrity

2010 Leopoldina, Acatech and BBAW

Predictive Genetic Diagnostics as an Instrument of Disease Prevention

German Ethics Council

Human biobanks for research

Canadian College of Medical Geneticists

Position Statement on the Storage of Patient Genetic Information in Electronic Health Records

2009 Council for International Organizations of Medical Sciences (CIOMS)

International Ethical Guidelines for Epidemiological Studies

OECD

Guidelines on Human Biobanks and Genetic Research Databases

2008 World Medical Association (WMA)

Declaration of Helsinki

International Cancer Genome Consortium (ICGC)

International Cancer Genome Consortium Goals, Structure, Policies & Guidelines

Canadian College of Medical Geneticists and Canadian Association of Genetic Counsellors

Joint Statement on the Process of Informed Consent for Genetic Research

2007 OECD

Guidelines for Quality Assurance in Molecular Genetic Testing

National Ethics Council

Predictive health information in the conclusion of insurance contracts

2005 National Ethics Council

Predictive health information in pre-employment medical examinations

2004 European Commission

25 Recommendations on the ethical, legal and social implications of genetic testing

2003 World Health Organisation (WHO)

Review of ethical Issues in Medical Genetics

UNESCO

International Declaration on Human Genetic Data

German Medical Association

Richtlinien zur prädiktiven genetischen Diagnostik

2002 Council for International Organizations of Medical Sciences (CIOMS)

International Ethical Guidelines for Biomedical Research Involving Human Subjects

World Medical Association (WMA)

Declaration on Ethical Considerations Regarding Health Databases

Human Genome Association (HUGO)

Statement on Human Genomic Databases

Enquete Commission „Law and Ethics in Modern Medicine“

Schlussbericht

1999 German Research Foundation (DFG)

Stellungnahme zur prädikativen genetischen Diagnostik

1998 Human Genome Association (HUGO)

Statement on DNA Sampling: Control and Access

German Medical Association

Richtlinie zur Diagnostik der genetischen Disposition für Krebserkrankungen

1997 Council of Europe

Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine

UNESCO

Universal Declaration on the Human Genome and Human Rights

1995 Human Genome Association (HUGO)

Statement on the Principled Conduct of Genetics Research

1994 UNESCO

Report on Genetic Screening and Testing

 

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